Driving to work today I had 8 million things running through my mind from what needs to get done for Christmas, who's coming to Christmas Eve dinner, to the list of things I need to get done at work, what kid needs to be where and when, what does the weekend look like for soccer, when are baseball tryouts, I better not forget to send a certain email, when does basketball start, we won't make flag football this weekend, do I have any more non work meetings after work this week to I have a hair appointment, I need to stop by the dentist office, I need to make myself a few Drs appointments etc. Eventually I just told myself, as I do often, Just.Keep.Going. Just.Keep. Going. My mind races and I hate it but it's always been this way.
The entire time I'm driving I'm half awake and am feeling like I'm getting sick(who has time for that!?) but I am listening to Christmas music because hello I LOVE Christmas. I love the magic it brings. Then a song came on and I flashed back to Monday night. We were shopping for gifts for the kids. Every kids store I went in I found myself stopping, staring at all the baby stuff, especially the baby girl stuff. And it's then I realize, for like the 10,000th time in my life, that I am done having kids and it's still hard seeing all the baby girl stuff. It's a HUGE trigger. I've talked about it before but when Kendall was a baby, it was incredibly stressful. Looking back I was too stressed out to enjoy her because I didn't know what her life would become. I felt like all I did was take her to Drs appointments, therapy appointments and wait. The waiting was filled with all the what if's. What if she never walks, what if she never talks, what if she doesn't make it through surgery(ies), what if her health fails her, what if, what if, what if. Those are some dark and hard what if's. I freeze in that moment in the store seeing all the baby girl stuff regretting the fact that I didn't enjoy the short time I had with her as an infant. I look back at pictures and am filled with more regret because she was one beautiful and sweet little baby girl and I, well I, was just too sad to realize it at the time. She had all the cutest outfits and the perfect nursery and my heart aches even more for what the stress of all the what if's took away from me. It striped me of newborn/new mom joy and bliss or whatever my idea of that was.
I want to go back, knowing what I know now, and replace all those what if's. I want to tell them to shut the fuck up and let me enjoy my first and only baby girl. I want that cloud of sadness that I had the first year + she was born to fade away so I could see her more, enjoy her more and not stress out. That, however, was not my reality and I can't get those years back. And I stand in the store staring at all the baby girl stuff frozen, just frozen.
Eventually I force my mind to shut off and focus on what feels like the 800 other things that I need to get done in that moment. I get out of the mall and on with my night. I get through half the week and my friend posts an article on my wall and I read the following quote : "I don’t believe carrying heavy emotions is what defines weakness; I believe carrying on despite them is what defines strength.".
Then I start to think more. I have carried some really heavy emotions and they have felt awful, really awful at times. But, I've gotten through so many of them. I don't feel strong daily by any means but I know I am so much stronger than I once was and it's because of all the emotions. I recognize them, I talk about them, I move through them even if it means I still freeze at times.
And I see Kendall in a totally different light now. I am in awe of her and her strength and confidence. I am so proud of her. Forget how strong I may or may not feel on any given day. She's the strong one, she's showing me the way. She's the one who has to brave the world being different, moving more slowly than the rest of the world, especially here in Silicon Valley. She has been STRONG, she has been CONFIDENT, she carries joy in her heart and is full of love. She doesn't stress about what she can and can't do. She just loves. She gives me strength. Watching her grow up has been a privilege. I may have huge regrets and sadness about not enjoying her short lived baby years but I sure as heck do enjoy her teenage years. I have such a different perspective now, 14 years into raising her. Though there are still times that leave me frozen, the majority of the time just leaves me in awe of her, her sweet soul, smile and life. I can't wait to see this Christmas and the next few years of life through her eyes and I'll continue to remind myself that she, she has made me strong.
Grins, Giggles and The Graff's
Wednesday, December 13, 2017
Tuesday, June 13, 2017
Peace Out 8th Grade, I'm still smiling
On my way to work today I found myself smiling in my car because 5 days ago Kendall graduated from 8th grade. She walked, ran actually, (Kendall speed) across the stage confidently, met the principal halfway, got her diploma and marched off so proudly. 3 kids from her class graduated and this was the first time, from my understanding, that her school had them walk. I laid it out in her IEP how it could and should be done, as she's just as deserving as anyone else, and they listened and implemented what I suggested and it was perfect. Literally PERFECT. I think the 3 kids graduating from her special ed class got the loudest and most cheers. That alone gives me hope that our teens, even adults and maybe even the world(at least in our liberal bubble of the Bay Area) is headed in the right direction.
As I drove to work, I thought of 13 years of IFSP's or IEP's that I have sat through and battled for what she needs. I remembered learning about IFSP's then IEP's as she entered school. I remember talking to a lot of people with a lot of opinions, trying to learn and understand how they work or should work. I remember getting great advice and having a lot of support. I also remember feeling like I was doing this alone as there wasn't enough advice or support out there because everything with Kendall was always just "we'll wait and see". That's a hard way to live. I'd rather know the worst and deal with it and heal then wait and see and not know what might happen. I thought about every single surgery she has had, all the hospital stays, how every February she gets pneumonia and how stressful that is, and how for the past 4 or 5 years I've managed to keep her out of the hospital by the grit of my teeth. I thought about everything that was told to me the day she was born and even months after. All the things she may not do. Would she even live a long life? I thought of how I spent, what felt like years, so sad over who she should have and could have been if she was just born a "typical" child. I remembered bursting into tears after a surgery when everything went wrong and she was at risk and by at risk they meant for dying. I remembered how I had never cried during an IEP until 6th grade, that one was so sad for me. I was so tired of hearing about how she didn't meet her goals or pass this or that test and just losing it(in front of a ton of strangers I might add). There has been a lot of sad over the years, probably more than most have experienced or could even understand. However, there I was smiling in my car.
Smiling because from 7th grade til now, in just 2 short years, Kendall has blossomed. She started to talk and literally never stops. You may not understand it all but lord she talks and talks and talks. She has become her brothers, who are majorly into sports, biggest cheerleader. Not only does she cheer for them though, she cheers for their entire team. Literally, she remembers each players name and cheers for them when they are up to bat or playing soccer or basketball etc. She cheers loudly, from her heart. If Brady goes down in soccer or baseball she bursts into tears immediately because she cares THAT MUCH. Imagine what it would look like if everyone cared that much!? She then gets herself together and asks "what happened?" and wants to know if everyone is ok. She's opinionated about clothes, about where we go and what we are doing, and where she sleeps(only wants to sleep in her own bed at home with Sadie, her saint of a dog). She talks about her friends at school, her amazing amazing teacher who has helped her become this confident teenager over the past 2 years, her aides at school who are also saints, she talks about food......OMG does she love food. Her heart is filled with love for her family and friends. Filled with love for complete strangers and even some boys. Love pours out of her and I sit here smiling because 13 years ago, I couldn't picture her graduating 8th grade and me being thrilled about it. But I'm more than thrilled. I don't even have the words to say how I feel to be honest. It was by far one of the best days of my life watching her walk across that stage knowing how far she has come in 13 years. She's dealt with far more crap in life than anyone else I know and she's still filled with happiness and joy 90(ish) % of the time.
I'll never stop saying this, she is by far the best teacher in my life. Without her, I know I wouldn't be who or where I am today. I'm just better in so many ways due to just being her mom. Sometimes I think I have been given this little gift/insight to certain parts of life that others don't have because of Kendall. I truly enjoy the small things. Without her I think I would have overlooked them so easily. I would have taken so much for granted like the boys abilities in sports or academics or whatever it may be. She made me a far better parent to them. I'm far from perfect, don't get me wrong, but I am so much better with her in my life. It's been such a ride raising her with emotions ranging all over the place. Yet I'm still smiling all because of one, what seems so simple, walk across a stage to get her 8th grade diploma. Kendall, I can't wait to see what else you have in store for me. Thank you for choosing me to be your mom. I am so so so so proud of you.
As I drove to work, I thought of 13 years of IFSP's or IEP's that I have sat through and battled for what she needs. I remembered learning about IFSP's then IEP's as she entered school. I remember talking to a lot of people with a lot of opinions, trying to learn and understand how they work or should work. I remember getting great advice and having a lot of support. I also remember feeling like I was doing this alone as there wasn't enough advice or support out there because everything with Kendall was always just "we'll wait and see". That's a hard way to live. I'd rather know the worst and deal with it and heal then wait and see and not know what might happen. I thought about every single surgery she has had, all the hospital stays, how every February she gets pneumonia and how stressful that is, and how for the past 4 or 5 years I've managed to keep her out of the hospital by the grit of my teeth. I thought about everything that was told to me the day she was born and even months after. All the things she may not do. Would she even live a long life? I thought of how I spent, what felt like years, so sad over who she should have and could have been if she was just born a "typical" child. I remembered bursting into tears after a surgery when everything went wrong and she was at risk and by at risk they meant for dying. I remembered how I had never cried during an IEP until 6th grade, that one was so sad for me. I was so tired of hearing about how she didn't meet her goals or pass this or that test and just losing it(in front of a ton of strangers I might add). There has been a lot of sad over the years, probably more than most have experienced or could even understand. However, there I was smiling in my car.
Smiling because from 7th grade til now, in just 2 short years, Kendall has blossomed. She started to talk and literally never stops. You may not understand it all but lord she talks and talks and talks. She has become her brothers, who are majorly into sports, biggest cheerleader. Not only does she cheer for them though, she cheers for their entire team. Literally, she remembers each players name and cheers for them when they are up to bat or playing soccer or basketball etc. She cheers loudly, from her heart. If Brady goes down in soccer or baseball she bursts into tears immediately because she cares THAT MUCH. Imagine what it would look like if everyone cared that much!? She then gets herself together and asks "what happened?" and wants to know if everyone is ok. She's opinionated about clothes, about where we go and what we are doing, and where she sleeps(only wants to sleep in her own bed at home with Sadie, her saint of a dog). She talks about her friends at school, her amazing amazing teacher who has helped her become this confident teenager over the past 2 years, her aides at school who are also saints, she talks about food......OMG does she love food. Her heart is filled with love for her family and friends. Filled with love for complete strangers and even some boys. Love pours out of her and I sit here smiling because 13 years ago, I couldn't picture her graduating 8th grade and me being thrilled about it. But I'm more than thrilled. I don't even have the words to say how I feel to be honest. It was by far one of the best days of my life watching her walk across that stage knowing how far she has come in 13 years. She's dealt with far more crap in life than anyone else I know and she's still filled with happiness and joy 90(ish) % of the time.
I'll never stop saying this, she is by far the best teacher in my life. Without her, I know I wouldn't be who or where I am today. I'm just better in so many ways due to just being her mom. Sometimes I think I have been given this little gift/insight to certain parts of life that others don't have because of Kendall. I truly enjoy the small things. Without her I think I would have overlooked them so easily. I would have taken so much for granted like the boys abilities in sports or academics or whatever it may be. She made me a far better parent to them. I'm far from perfect, don't get me wrong, but I am so much better with her in my life. It's been such a ride raising her with emotions ranging all over the place. Yet I'm still smiling all because of one, what seems so simple, walk across a stage to get her 8th grade diploma. Kendall, I can't wait to see what else you have in store for me. Thank you for choosing me to be your mom. I am so so so so proud of you.
Tuesday, September 20, 2016
3 nights.
The last 3 nights I've laid with you as you went to sleep. I haven't had to do that in a long time but it brought back a flash of memories. Your glider lives at a friends house now. Every now and then I go over to their house and it's a chair I still want to sit in after 13 years. I could rock in it forever, it's so comforting. Rocking you as a infant, baby, toddler and even years beyond was the one thing I knew I was doing right. Tonight as I lay in your bedroom, I remember how it was once our office in this house. That led me to remembering your nursery at our old condo, the pink bottom half with moulding with the white top half and a net of stuffed animals hanging in the corner above the glider. I remember trying to perfectly place all the stuffed animals in the darn net without them falling out and what a pain that was. I remember Shannon's white crib that we borrowed and how it fit so perfectly in the nursery. I remember the hand painted sky with clouds on your ceiling that Jackie and I spent a long time perfecting. And how could I forget the perfect princess quilt hung with 3 big white stars on your nursery wall. The closet doors were taken out and replaced with light weight white fabric hanging so you could see your perfectly cute baby girl clothing all lined up and baby shoes, so many baby shoes, all the baby shoes.
I rocked in the glider in that room for months before you were born. I imagined what you would be like, what being a mom would be like. I felt you kick and move and I imagined more and read so many books. I LOVED figuring out what your name would be. Kylie, yes Kylie it was for many many months and then surprise we made a last minute change to Kendall, Kendall Elizabeth. We liked that the first name wasn't that common and that your middle name was the same as mine and my grandmothers. That surprise last minute change of your name should have warned me about all the surprises that were to come with you once you were born. I was so ready to meet you but you didn't want to come out early at all. You were 8 days late. 8 LONG LONG days late. And then tomorrow night at this time I was in the hospital being induced. I didn't know what to expect, I was just excited and then the first contraction came. I didn't realize it was a contraction I just thought it was a bad cramp then they kept coming. Dan was the one who looked at me and said "OH MY GOD, those aren't cramps they are contractions." I panicked. The pain came so fast. I finally got all settled with meds. Then a few hours later you were born. And BAM the room turned to silence. Something wasn't right I could sense it, I knew it. No one could say anything, they all tried to reassure me but I KNEW. I guess that was my first mother's instinct. Something wasn't right. And then everyone but my doctor and I left the room. I sat stunned in silence.
Tonight in a matter of 30 minutes while I laid with you so many memories came flooding back. You sleep with the same bunny and in the same position as you did when you were a baby. You stroke the bunny in a calming way that soothes you still to this day. I hope my presence still soothes you as well. You my baby girl, my first born, the one I've learned the best lessons in life from. I hope I can forever soothe and help you. It's funny how when all goes silent you can really remember and feel all that has happened in what feels like the blink of an eye but in reality it's been almost 13 years. The hardest most rewarding 13 years of my life. They are because of you Miss K. I'd never know all I know now if it weren't for you. Thank you for choosing me to be your mama. God or whoever it was up there had some real faith in me because I would have never thought I could do it or do it well. However, here I am and here you are thriving, makes me feel like I've done one big thing right in life. Sleep tight baby girl, for you are almost a teenager.
The last 3 nights I've laid with you as you went to sleep. I haven't had to do that in a long time but it brought back a flash of memories. Your glider lives at a friends house now. Every now and then I go over to their house and it's a chair I still want to sit in after 13 years. I could rock in it forever, it's so comforting. Rocking you as a infant, baby, toddler and even years beyond was the one thing I knew I was doing right. Tonight as I lay in your bedroom, I remember how it was once our office in this house. That led me to remembering your nursery at our old condo, the pink bottom half with moulding with the white top half and a net of stuffed animals hanging in the corner above the glider. I remember trying to perfectly place all the stuffed animals in the darn net without them falling out and what a pain that was. I remember Shannon's white crib that we borrowed and how it fit so perfectly in the nursery. I remember the hand painted sky with clouds on your ceiling that Jackie and I spent a long time perfecting. And how could I forget the perfect princess quilt hung with 3 big white stars on your nursery wall. The closet doors were taken out and replaced with light weight white fabric hanging so you could see your perfectly cute baby girl clothing all lined up and baby shoes, so many baby shoes, all the baby shoes.
I rocked in the glider in that room for months before you were born. I imagined what you would be like, what being a mom would be like. I felt you kick and move and I imagined more and read so many books. I LOVED figuring out what your name would be. Kylie, yes Kylie it was for many many months and then surprise we made a last minute change to Kendall, Kendall Elizabeth. We liked that the first name wasn't that common and that your middle name was the same as mine and my grandmothers. That surprise last minute change of your name should have warned me about all the surprises that were to come with you once you were born. I was so ready to meet you but you didn't want to come out early at all. You were 8 days late. 8 LONG LONG days late. And then tomorrow night at this time I was in the hospital being induced. I didn't know what to expect, I was just excited and then the first contraction came. I didn't realize it was a contraction I just thought it was a bad cramp then they kept coming. Dan was the one who looked at me and said "OH MY GOD, those aren't cramps they are contractions." I panicked. The pain came so fast. I finally got all settled with meds. Then a few hours later you were born. And BAM the room turned to silence. Something wasn't right I could sense it, I knew it. No one could say anything, they all tried to reassure me but I KNEW. I guess that was my first mother's instinct. Something wasn't right. And then everyone but my doctor and I left the room. I sat stunned in silence.
Tonight in a matter of 30 minutes while I laid with you so many memories came flooding back. You sleep with the same bunny and in the same position as you did when you were a baby. You stroke the bunny in a calming way that soothes you still to this day. I hope my presence still soothes you as well. You my baby girl, my first born, the one I've learned the best lessons in life from. I hope I can forever soothe and help you. It's funny how when all goes silent you can really remember and feel all that has happened in what feels like the blink of an eye but in reality it's been almost 13 years. The hardest most rewarding 13 years of my life. They are because of you Miss K. I'd never know all I know now if it weren't for you. Thank you for choosing me to be your mama. God or whoever it was up there had some real faith in me because I would have never thought I could do it or do it well. However, here I am and here you are thriving, makes me feel like I've done one big thing right in life. Sleep tight baby girl, for you are almost a teenager.
Saturday, September 3, 2016
Dear Kendall
Dear Kendall,
Today I watched a 13 year old and her mom. She was a few inches shorter than her mom, they spent time chatting and walking. I thought about if she looked more like her mom or dad. I watched their interactions. For a few seconds I had what if's running through my mind. What if you were not born with a rare chromosome disorder, how tall would you be, what would you look like, what would you be experiencing in 8th grade that you aren't right now? What if, what if, what if. Those thoughts could tear me apart if I let them and they have in the past. However, rather than in years past where I would get stuck on the what if's, I quickly changed my thoughts. I thought about how far you've come, how you talk after years of not talking and it's understandable, and I thought about how great your laugh is. How you still throw one hand over your face when you laugh really hard. I look at all the amazing lessons you have taught our family and friends in life. Look at how you see the world, full of love and kindness, never hate. What if you were a "typical" kid? What if? Who would your brothers be if you were "typical"? Would they understand compassion and have the empathy that they have now? Would they take the time that they do to help others? Would they know how to help their sister when she needs it? Would I have the empathy and understanding of others that I have because of having you in my life? Would I be able to look at the world through your eyes if I had a "typical" daughter? Would I see the world with the same love that you do if it weren't for you? No. No way.
I am smarter because of you. Wiser because of you. More accepting, patient(most of the time), and caring because of you. I've lived a lifetime in almost 13 short years because of you. Because of you I'm resilient. I get down but I don't stay down, not for long. I come back. Yep, I keep coming back. I come back better and stronger because of you and I will continue to do so. You inspire me. You make me speak my mind. You have forced me to advocate, not just for you but for myself and my life. You have taught me to talk about my feelings more, to express myself, to share what it's like to raise you. You are one of the best lessons I've ever had in life and I think what a shame others don't get to learn the lessons that you have taught me. You made me a mama but the non "typical" you made me a better mama then I ever would have been if I didn't have you. I saw another girl and mom walking today, I compared lives for a moment but I didn't get stuck in that moment. Rather, I was able to think about all the moments we have had because of you that in turn have made us all better and stronger. I don't know anything different and after almost 13 years I can say I don't want to know anything different. Thank you for being one of the greatest teachers in my life. You are small but mighty and very very loved. I sure hope you know that.
Love,
Mom
Today I watched a 13 year old and her mom. She was a few inches shorter than her mom, they spent time chatting and walking. I thought about if she looked more like her mom or dad. I watched their interactions. For a few seconds I had what if's running through my mind. What if you were not born with a rare chromosome disorder, how tall would you be, what would you look like, what would you be experiencing in 8th grade that you aren't right now? What if, what if, what if. Those thoughts could tear me apart if I let them and they have in the past. However, rather than in years past where I would get stuck on the what if's, I quickly changed my thoughts. I thought about how far you've come, how you talk after years of not talking and it's understandable, and I thought about how great your laugh is. How you still throw one hand over your face when you laugh really hard. I look at all the amazing lessons you have taught our family and friends in life. Look at how you see the world, full of love and kindness, never hate. What if you were a "typical" kid? What if? Who would your brothers be if you were "typical"? Would they understand compassion and have the empathy that they have now? Would they take the time that they do to help others? Would they know how to help their sister when she needs it? Would I have the empathy and understanding of others that I have because of having you in my life? Would I be able to look at the world through your eyes if I had a "typical" daughter? Would I see the world with the same love that you do if it weren't for you? No. No way.
I am smarter because of you. Wiser because of you. More accepting, patient(most of the time), and caring because of you. I've lived a lifetime in almost 13 short years because of you. Because of you I'm resilient. I get down but I don't stay down, not for long. I come back. Yep, I keep coming back. I come back better and stronger because of you and I will continue to do so. You inspire me. You make me speak my mind. You have forced me to advocate, not just for you but for myself and my life. You have taught me to talk about my feelings more, to express myself, to share what it's like to raise you. You are one of the best lessons I've ever had in life and I think what a shame others don't get to learn the lessons that you have taught me. You made me a mama but the non "typical" you made me a better mama then I ever would have been if I didn't have you. I saw another girl and mom walking today, I compared lives for a moment but I didn't get stuck in that moment. Rather, I was able to think about all the moments we have had because of you that in turn have made us all better and stronger. I don't know anything different and after almost 13 years I can say I don't want to know anything different. Thank you for being one of the greatest teachers in my life. You are small but mighty and very very loved. I sure hope you know that.
Love,
Mom
Friday, May 6, 2016
What made me a mom?
Giving birth to a baby girl at age 29 technically made me a mom right away but I think over time I became a mom. I think every mom "becomes" differently. Some may feel it the minute they get a positive pregnancy test, some may feel it the moment their baby is born and laid on their chest or put in their arms and others, like me, may take time, more time to "become" a mom. I'll never in my entire life forget the moment Kendall was born. The only words I heard around 2:14am early Monday morning were "you have a really small baby" and then the room went DEAD silent, everyone cleared out and went to the NICU, everyone but my OBGYN and me. Thinking about it to this day gives me the chills(and not the good chills).
I didn't get to hold her right away, the first diaper I changed of hers were with my hands through an incubator while I was shaking and sobbing, I didn't bond with her right away, I think mostly out of pure fear. That fear that keeps you protected and safe in case something bad happens and trust me when I say most everyone thought and feared the worst. When I finally held her she had an IV in her head and tubes, there were so many tubes, they were everywhere. I didn't know what I was doing. In fact, my OBGYN thought I was so in shock that he had to talk me into going to see her in the NICU. Not every mother just becomes.
I kept holding her, feeding her, changing her, and holding her some more feeling so unnatural and so NOT at ease. I didn't feel like a mom. I felt scared and in shock. But I held her, fed her, changed her and held her some more. Pictures were taken, I smiled but I was so sad and scared. I never expected to have a child with special needs. I didn't know how to be a mom let alone one to a child like Kendall. I held her, fed her, changed her and held her some more. Dan did the same, he was much better at it. It came naturally to him. On day 2 I had to leave the hospital while Kendall had to stay. I went home with this feeling of just no longer being pregnant but I didn't feel like a mom. I stayed at the hospital as much as I could when I was released, holding her, feeding her, changing her and holding her some more. Each day a baby step forward and on day 6 she was allowed to come home. I still didn't feel like a mom. I felt like a Dr/Therapist in training and slowly became my own version of that with Kendall by my side but still not feeling like a mom and definitely not a good mom. The first year, day in and day out, I held her, fed her, changed her, and held her some more while attending hundreds of Drs and therapy appointments. With every feeding, every changing, every cuddle it slowly became more natural.
My entire world had changed and very differently than that of my other friends with newborns. Hold her, feed her, change her and hold her some more. 2 months in she smiled, 4 months in she sat up, 2.5 years in and she finally walked. Many surgeries and therapies later over the years and then one day things shifted....I now knew I was a mom, a mom different than any other mom I knew but also a mom who was very similar to every other mom I knew. I felt like a mom, I was confident in being a mom and I knew I would do anything in the world for Miss K. It wasn't what I expected but overtime I became and Kendall forced me to become and changed me to the core. I was still far from the perfect mom(there's no such thing as a perfect mom or person by the way) but I changed for the better because of her. I felt confident in caring for her and giving her what she needed. I stopped worrying about what her future life would look like and most importantly (and this happened really early on) I threw out all the parenting books and let my gut figure it out. AND it has never proven me wrong with any of my kids to this day.
I write this because with Mother's Day around the corner some may be ashamed to admit they didn't feel like they became a mom right when their baby was put in their arms but it doesn't mean you won't become a fantastic one in time, and as long as you become in your own time frame and that baby is loved, you are doing a fantastic job. Don't ever forget it. It's the hardest job on earth, being a parent, so give yourself some slack and know you are just doing the best you can. Becoming a mom is different for everyone. When you feel it, it's pretty darn amazing.
Giving birth to a baby girl at age 29 technically made me a mom right away but I think over time I became a mom. I think every mom "becomes" differently. Some may feel it the minute they get a positive pregnancy test, some may feel it the moment their baby is born and laid on their chest or put in their arms and others, like me, may take time, more time to "become" a mom. I'll never in my entire life forget the moment Kendall was born. The only words I heard around 2:14am early Monday morning were "you have a really small baby" and then the room went DEAD silent, everyone cleared out and went to the NICU, everyone but my OBGYN and me. Thinking about it to this day gives me the chills(and not the good chills).
I didn't get to hold her right away, the first diaper I changed of hers were with my hands through an incubator while I was shaking and sobbing, I didn't bond with her right away, I think mostly out of pure fear. That fear that keeps you protected and safe in case something bad happens and trust me when I say most everyone thought and feared the worst. When I finally held her she had an IV in her head and tubes, there were so many tubes, they were everywhere. I didn't know what I was doing. In fact, my OBGYN thought I was so in shock that he had to talk me into going to see her in the NICU. Not every mother just becomes.
I kept holding her, feeding her, changing her, and holding her some more feeling so unnatural and so NOT at ease. I didn't feel like a mom. I felt scared and in shock. But I held her, fed her, changed her and held her some more. Pictures were taken, I smiled but I was so sad and scared. I never expected to have a child with special needs. I didn't know how to be a mom let alone one to a child like Kendall. I held her, fed her, changed her and held her some more. Dan did the same, he was much better at it. It came naturally to him. On day 2 I had to leave the hospital while Kendall had to stay. I went home with this feeling of just no longer being pregnant but I didn't feel like a mom. I stayed at the hospital as much as I could when I was released, holding her, feeding her, changing her and holding her some more. Each day a baby step forward and on day 6 she was allowed to come home. I still didn't feel like a mom. I felt like a Dr/Therapist in training and slowly became my own version of that with Kendall by my side but still not feeling like a mom and definitely not a good mom. The first year, day in and day out, I held her, fed her, changed her, and held her some more while attending hundreds of Drs and therapy appointments. With every feeding, every changing, every cuddle it slowly became more natural.
My entire world had changed and very differently than that of my other friends with newborns. Hold her, feed her, change her and hold her some more. 2 months in she smiled, 4 months in she sat up, 2.5 years in and she finally walked. Many surgeries and therapies later over the years and then one day things shifted....I now knew I was a mom, a mom different than any other mom I knew but also a mom who was very similar to every other mom I knew. I felt like a mom, I was confident in being a mom and I knew I would do anything in the world for Miss K. It wasn't what I expected but overtime I became and Kendall forced me to become and changed me to the core. I was still far from the perfect mom(there's no such thing as a perfect mom or person by the way) but I changed for the better because of her. I felt confident in caring for her and giving her what she needed. I stopped worrying about what her future life would look like and most importantly (and this happened really early on) I threw out all the parenting books and let my gut figure it out. AND it has never proven me wrong with any of my kids to this day.
I write this because with Mother's Day around the corner some may be ashamed to admit they didn't feel like they became a mom right when their baby was put in their arms but it doesn't mean you won't become a fantastic one in time, and as long as you become in your own time frame and that baby is loved, you are doing a fantastic job. Don't ever forget it. It's the hardest job on earth, being a parent, so give yourself some slack and know you are just doing the best you can. Becoming a mom is different for everyone. When you feel it, it's pretty darn amazing.
Sunday, November 1, 2015
Gaining Independence!!
I always do my best to be honest when I write about my experiences when it comes to raising Kendall. That can include all sorts of emotions from very low lows, sadness and frustration to happiness, joy and being in complete awe of her and her accomplishments. I try to keep it real in hopes that all can feel what it's like to raise a child with special needs through my writing. It's been quite the ride if you've known Kendall since she was born or even if you've followed some of the things I've written here about her. She turned 12 on September 22 and is now in 7th grade. Sometimes I look at her and think why does it feel like it takes so long for her to really understand things and other times, like this past week, I look at her and see just how much she's grown and how much independence she has gained. I mean my biggest goal for her in life is to become as independent, happy and confident as possible. It's going to look different than that of a typical kid but I don't care how it looks or how she gets there, I just want to see it happen and I know it will take longer. I'm ok with that. And from the start, I've always said the best part about Kendall is her heart and how caring and loving she is. That's her best quality in my opinion.
Here are a few recent highlights/brags because she deserves recognition just like the rest of us do. Earlier this week we got a letter from her middle school saying she had been selected for an award by her teacher for modeling her schools "Bronco" attitude, specifically modeling "Good judgement". "Students with good judgement show concern for fairness and the welfare involved, make careful decisions, possess freedom from preconceptions and biases". If you ask me, that's pretty cool, especially that last part. Those things are not easy to teach to a typical 7th grader, specifically one with special needs, yet here she is getting this award this week. It's a moment worth celebrating for sure!
As Halloween approached earlier this week she was quite excited. She was a princess pirate and LOVES to get dressed up.
This year we went trick or treating with a big pack of boys from the neighborhood and a couple of Brady's friends. She use to tire quickly walking around and we use to have to walk with her to each door encouraging her to say or even sign trick or treat and use her thank you's. This year she didn't wear out, she kept up with the boys and confidently went to each door as we stood back, really far back actually. She said Trick or Treat clearly and confidently and used her thank you's every time. As I stood back from afar all I could think of was the first probably 5+ years of life when all I could do was wonder when/if/what she would accomplish in life and I remember so clearly how stressful that was. And here she was now not missing a beat, doing this all on her own with a little help from her amazing brothers and their friends. I know she's teaching her brothers a lot about life, including empathy and compassion and I sure hope their friends are learning from her as well. I think they are because I witnessed it last night and it warms my heart. It may not sound like much to people with typical 12 year old kids but last night was a big step for her and her independence....huge actually. Amazing and I was so proud of her.
Finally tonight as Dan was cooking dinner, I look over and she's setting the table. I'm not sure if he asked her to or not but she's happily doing it and doing it correctly. Placemats were set, then forks with napkins, she asked me if we needed spoons(we didn't), she put cups out and filled them with water without spilling. Then laid the plates out(don't judge our paper plates ;). And again, I sat there and thought about all the things people said she may never do. Here she is proving them wrong. Being independent and happily helping us out. Of course I had to take pics and document it:
Finally, and I wish I had pics of this or video of it but she has some pretty active brothers in all kinds of sports throughout the year. She loves watching them play and this season in soccer when Chase scored one of his goals she jumped up and ran to me yelling Go "BOO BOO BEAR"(his nickname) she was so excited for him and immediately asked me if she could go hug him. When Chase tested for his purple belt and 3.5 hours later passed she went up to him and gave him the biggest hug and kiss on the cheek that I've ever seen, it was completely spontaneous and so very sweet. She cheers for Brady in soccer when he's playing goalie or on the field just as much. She's not perfect, no one is, but this is one strong, amazing and loving girl! I'm so proud and lucky to be her mama. I'm thankful for her and I'm loving watching her grow into a more independent young woman, even if day to day it can feel like such baby steps until weeks like this one where it all starts to come together. Amazing, just completely amazing. I can't wait to watch her continue to grow and amaze everyone out there as much as she amazes me. Parenting a child with special needs is not for the faint of heart but as I've said time after time, she's teaching me more in life than anyone else ever has and for that I'm very grateful! She's my hero in so many ways, so much stronger than I'll ever be.
https://www.youtube.com/watch?v=WEPB76o2KXw
We could hide away in daylight
We go undercover, wait out the sun
Got a secret side in plain sight
Where the streets are empty, that's where we run
Everyday people do everyday things but I
Can't be one of them
I know you hear me now, we are a different kind
We can do anything
We could be heroes
We could be heroes, me and you
We could be heroes
We could be heroes, me and you
We could be
Anybody's got the power
They don't see it cause they don't understand
Spin around and round for hours
You and me, we got the world in our hands
Everyday people do everyday things but I
Can't be one of them
I know you hear me now, we are a different kind
We can do anything
We could be heroes
We could be heroes, me and you
We could be heroes
We could be heroes, me and you
We could be
We could be heroes
We could be heroes
Me and you
We could be
All we're looking for is love and a little light
Love and a little light
(We could be)
All we're looking for is love and a little light
Love and a little light
We could be heroes
We could be heroes
Me and you
We could be
I always do my best to be honest when I write about my experiences when it comes to raising Kendall. That can include all sorts of emotions from very low lows, sadness and frustration to happiness, joy and being in complete awe of her and her accomplishments. I try to keep it real in hopes that all can feel what it's like to raise a child with special needs through my writing. It's been quite the ride if you've known Kendall since she was born or even if you've followed some of the things I've written here about her. She turned 12 on September 22 and is now in 7th grade. Sometimes I look at her and think why does it feel like it takes so long for her to really understand things and other times, like this past week, I look at her and see just how much she's grown and how much independence she has gained. I mean my biggest goal for her in life is to become as independent, happy and confident as possible. It's going to look different than that of a typical kid but I don't care how it looks or how she gets there, I just want to see it happen and I know it will take longer. I'm ok with that. And from the start, I've always said the best part about Kendall is her heart and how caring and loving she is. That's her best quality in my opinion.
Here are a few recent highlights/brags because she deserves recognition just like the rest of us do. Earlier this week we got a letter from her middle school saying she had been selected for an award by her teacher for modeling her schools "Bronco" attitude, specifically modeling "Good judgement". "Students with good judgement show concern for fairness and the welfare involved, make careful decisions, possess freedom from preconceptions and biases". If you ask me, that's pretty cool, especially that last part. Those things are not easy to teach to a typical 7th grader, specifically one with special needs, yet here she is getting this award this week. It's a moment worth celebrating for sure!
As Halloween approached earlier this week she was quite excited. She was a princess pirate and LOVES to get dressed up.
This year we went trick or treating with a big pack of boys from the neighborhood and a couple of Brady's friends. She use to tire quickly walking around and we use to have to walk with her to each door encouraging her to say or even sign trick or treat and use her thank you's. This year she didn't wear out, she kept up with the boys and confidently went to each door as we stood back, really far back actually. She said Trick or Treat clearly and confidently and used her thank you's every time. As I stood back from afar all I could think of was the first probably 5+ years of life when all I could do was wonder when/if/what she would accomplish in life and I remember so clearly how stressful that was. And here she was now not missing a beat, doing this all on her own with a little help from her amazing brothers and their friends. I know she's teaching her brothers a lot about life, including empathy and compassion and I sure hope their friends are learning from her as well. I think they are because I witnessed it last night and it warms my heart. It may not sound like much to people with typical 12 year old kids but last night was a big step for her and her independence....huge actually. Amazing and I was so proud of her.
Finally tonight as Dan was cooking dinner, I look over and she's setting the table. I'm not sure if he asked her to or not but she's happily doing it and doing it correctly. Placemats were set, then forks with napkins, she asked me if we needed spoons(we didn't), she put cups out and filled them with water without spilling. Then laid the plates out(don't judge our paper plates ;). And again, I sat there and thought about all the things people said she may never do. Here she is proving them wrong. Being independent and happily helping us out. Of course I had to take pics and document it:
Finally, and I wish I had pics of this or video of it but she has some pretty active brothers in all kinds of sports throughout the year. She loves watching them play and this season in soccer when Chase scored one of his goals she jumped up and ran to me yelling Go "BOO BOO BEAR"(his nickname) she was so excited for him and immediately asked me if she could go hug him. When Chase tested for his purple belt and 3.5 hours later passed she went up to him and gave him the biggest hug and kiss on the cheek that I've ever seen, it was completely spontaneous and so very sweet. She cheers for Brady in soccer when he's playing goalie or on the field just as much. She's not perfect, no one is, but this is one strong, amazing and loving girl! I'm so proud and lucky to be her mama. I'm thankful for her and I'm loving watching her grow into a more independent young woman, even if day to day it can feel like such baby steps until weeks like this one where it all starts to come together. Amazing, just completely amazing. I can't wait to watch her continue to grow and amaze everyone out there as much as she amazes me. Parenting a child with special needs is not for the faint of heart but as I've said time after time, she's teaching me more in life than anyone else ever has and for that I'm very grateful! She's my hero in so many ways, so much stronger than I'll ever be.
https://www.youtube.com/watch?v=WEPB76o2KXw
We could hide away in daylight
We go undercover, wait out the sun
Got a secret side in plain sight
Where the streets are empty, that's where we run
Everyday people do everyday things but I
Can't be one of them
I know you hear me now, we are a different kind
We can do anything
We could be heroes
We could be heroes, me and you
We could be heroes
We could be heroes, me and you
We could be
Anybody's got the power
They don't see it cause they don't understand
Spin around and round for hours
You and me, we got the world in our hands
Everyday people do everyday things but I
Can't be one of them
I know you hear me now, we are a different kind
We can do anything
We could be heroes
We could be heroes, me and you
We could be heroes
We could be heroes, me and you
We could be
We could be heroes
We could be heroes
Me and you
We could be
All we're looking for is love and a little light
Love and a little light
(We could be)
All we're looking for is love and a little light
Love and a little light
We could be heroes
We could be heroes
Me and you
We could be
Tuesday, August 25, 2015
The Dark(er) Side Of Me
Sometimes in life my world becomes gray and NOTHING seems to go right. You name it and it's likely wrong, off or not fair. Even the littlest things seem to bother me. I think things like why is this happening to me and not anyone else, when will it all get better etc. Usually this happens to me around Kendall's IEP or her birthday, there are often triggers. Even though I know there are triggers I still almost NEVER see it coming. It sort of feels like the joy is sucked right out of me or I've fallen and I can't get up. Or if I do get up, it's like the weight of 10,000 pounds is attached to my feet while I'm trying to get up. It feels like I just can't breathe, like life is way way way too hard, like things can't get worse. And when I'm surrounded by happy people at this time, I can hardly sit and listen to their happiness which in turn makes me feel like a SHITTY friend. My anxiety sky rockets and it's all I can do to get through each hour of each day. It's anxiety combined with some SITUATIONAL depression. Different things trigger it and usually it lasts a few days or weeks but this time it lasted months. When this happens, I have a hard time telling anyone about it which is STUPID because it's really when I need the most support. So now I'm writing about it because if you know me at all you know I write when I'm upset. I try to be honest, raw and not hide how I feel in all my interactions but this, THIS is hard to talk about while it's happening. In the end, I know I ALWAYS get up. There's no not getting up, not with 3 kids, not with a child with special needs. I won't let that happen. I'm strong enough, even in my weakest moments, to know that at the very least I can fake it until I make it, during that time it's hard to breath but I keep on keeping on.
At some point when all of this is going on people notice. Thankfully, my friends and family notice. I mean I'm usually social and overall pretty happy the majority of the time. So my friends and family do their best to help me feel better for which I'm eternally grateful. Sometimes it works and is just what I need but not this time. This time it didn't help enough and I just kept hearing myself tell my brain the same story about how awful I was feeling and how hard my life was. This is when I know/knew it's time to get back to therapy. I've been in and out of therapy since I was in my 20's and it's saved me. Today, she called BS on some things I said and also talked to me about how to stop obsessive negative thoughts or obsessive unhealthy thoughts. In 50 minutes she made me realize that it's not all that bad, that there is a lot of good and the bad parts can be worked on. Nothing is ever black, white or permanent. I feel 100 times better than I did at 2pm today and I am hopeful that my grayness continues to go away little by little, bit by bit. I know it will, it always does and then I grow and feel stronger and am able to talk about it. Maybe the fact that I'm writing about it already means it's getting better because I'm actually admitting it out loud here and now. Life is hard and challenging on so many different levels(marriage, kids, work whatever). I don't want to be the person that pretends it's not. I want to be the person that deals with the crap life brings and becomes stronger for it so here I sit and write. Today I finally feel a little bit stronger(I definitely tend to reference a lot of country songs on this blog ;) ) and a lot more grateful for all the things I have.
If you feel this way, get help. Don't feel any shame in seeing a good therapist. Don't be afraid to really work on yourself. It's scary, you'll hate hearing the therapist call you out on your own shit because she's right and it's painful to hear/recognize but it's the best gift I've given myself. I'm still a big work in progress at the ripe ol' age of 41. Here's to a healthy self, to a very healthy me all around...mentally and physically. Peace out.
Sometimes in life my world becomes gray and NOTHING seems to go right. You name it and it's likely wrong, off or not fair. Even the littlest things seem to bother me. I think things like why is this happening to me and not anyone else, when will it all get better etc. Usually this happens to me around Kendall's IEP or her birthday, there are often triggers. Even though I know there are triggers I still almost NEVER see it coming. It sort of feels like the joy is sucked right out of me or I've fallen and I can't get up. Or if I do get up, it's like the weight of 10,000 pounds is attached to my feet while I'm trying to get up. It feels like I just can't breathe, like life is way way way too hard, like things can't get worse. And when I'm surrounded by happy people at this time, I can hardly sit and listen to their happiness which in turn makes me feel like a SHITTY friend. My anxiety sky rockets and it's all I can do to get through each hour of each day. It's anxiety combined with some SITUATIONAL depression. Different things trigger it and usually it lasts a few days or weeks but this time it lasted months. When this happens, I have a hard time telling anyone about it which is STUPID because it's really when I need the most support. So now I'm writing about it because if you know me at all you know I write when I'm upset. I try to be honest, raw and not hide how I feel in all my interactions but this, THIS is hard to talk about while it's happening. In the end, I know I ALWAYS get up. There's no not getting up, not with 3 kids, not with a child with special needs. I won't let that happen. I'm strong enough, even in my weakest moments, to know that at the very least I can fake it until I make it, during that time it's hard to breath but I keep on keeping on.
At some point when all of this is going on people notice. Thankfully, my friends and family notice. I mean I'm usually social and overall pretty happy the majority of the time. So my friends and family do their best to help me feel better for which I'm eternally grateful. Sometimes it works and is just what I need but not this time. This time it didn't help enough and I just kept hearing myself tell my brain the same story about how awful I was feeling and how hard my life was. This is when I know/knew it's time to get back to therapy. I've been in and out of therapy since I was in my 20's and it's saved me. Today, she called BS on some things I said and also talked to me about how to stop obsessive negative thoughts or obsessive unhealthy thoughts. In 50 minutes she made me realize that it's not all that bad, that there is a lot of good and the bad parts can be worked on. Nothing is ever black, white or permanent. I feel 100 times better than I did at 2pm today and I am hopeful that my grayness continues to go away little by little, bit by bit. I know it will, it always does and then I grow and feel stronger and am able to talk about it. Maybe the fact that I'm writing about it already means it's getting better because I'm actually admitting it out loud here and now. Life is hard and challenging on so many different levels(marriage, kids, work whatever). I don't want to be the person that pretends it's not. I want to be the person that deals with the crap life brings and becomes stronger for it so here I sit and write. Today I finally feel a little bit stronger(I definitely tend to reference a lot of country songs on this blog ;) ) and a lot more grateful for all the things I have.
If you feel this way, get help. Don't feel any shame in seeing a good therapist. Don't be afraid to really work on yourself. It's scary, you'll hate hearing the therapist call you out on your own shit because she's right and it's painful to hear/recognize but it's the best gift I've given myself. I'm still a big work in progress at the ripe ol' age of 41. Here's to a healthy self, to a very healthy me all around...mentally and physically. Peace out.
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About Me
- Courtney Powers-Graff
- Married mom of 3 not so little ones anymore but they still keep me grinning and giggling(most of the time). Kendall, age 12, Brady age 8 almost 9 and "baby" Chase who is 7. I have been married for 14.5 years to Dan Graff, who I think is the best dad ever to our kids. He certainly makes me grin and giggle to this very day. I have spent my non mom career working in recruiting on and off over the years recruiting Software Engineers. Other than my kids my most favorite thing to do in the entire word is ride horses followed by Kung Fu, where I earned my purple belt last year. I have been riding since I was 8 years old, with some time off here and there but I always go back to it. As Winston Churchill said, "There is something about the outside of a horse that is good for the inside of a man"(or woman in this case)!